Swimming for Muscular Dystrophy

I wanted to share this message from ParentProjectMuscularDystrophy, a site supporting Duchenne and Becker Muscular Dystrophy people and their families:

Olympic Gold for Ryan Lochte & PPMD


We’ve been updating you on Ryan Lochte, the Olympic swimmer who is supporting Parent Project Muscular Dystrophy, and now we can proudly say that he will be bringing home two gold medals and two bronze medals, as well as a new world record! This incredible athlete, swimming on behalf of those with Duchenne, has truly become one of the 2008 Olympic heroes.

We wanted to give you an opportunity to congratulate, thank, or just fawn over Ryan! We will be bundling up and passing along letters and emails to him, upon his return from Beijing. To take part, simply email info@parentprojectmd.org and put “For Ryan Lochte” in the subject line. Or, if you would rather send something the old fashioned way, mail it to:
Ryan Lochte
c/o Parent Project Muscular Dystrophy
158 Linwood Plaza, Suite 220
Fort Lee, New Jersey 07024

You can also support Ryan by giving a donation to Ryan’s personal fundraising page. Just click here and say thank you to Ryan, while helping PPMD end Duchenne.

The Olympics are not over, but what a thrilling start and what a rare treat to have someone competing on our community’s behalf!

DMD Art

Darius Goes West vehicle

We ordered and watched this video about a boy with DMD, the condition we thought Matthias had at first (Matthias' is a less-severe form). I thought it was worth watching (language warning), but Frank wasn't as impressed.

They sent an email asking us to share their trailer ("vehicle"), which I thought was worthwhile.



As DMD art goes, the book I read a couple years ago was better: The Boys, or, Waiting for the Electrician's Daughter by John Terpstra. This one is actually by a Christian Reformed author, as I remember, so it comes on familiar ground for some of us.